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Comprehensive Cleft Care, Together
Since our founding in 1999 we’ve embraced: local health team leadership, a comprehensive approach to care, and full inclusion for children with cleft - in their homes, at school, and in the community.
Comprehensive Cleft Care for all is our rallying cry. Together we can ensure children and their families access the care they require, as close to home as possible.
How you can help transform cleft care with us
“Thank you for all the help during this cleft journey. We are really appreciative! My daughter is beautiful and now healthy too, thanks to this project, the social worker and surgeon. That is all we can ask for. We will not forget this help.”
- Phyo, a father from Myanmar
The Transforming Cleft Difference
Our focus is Comprehensive Cleft Care (CCC). From parent support, to nutritional care for infants, to safe surgeries and full post-surgical care, a CCC treatment pathway is multi-disciplinary and appropriately timed for each child’s long-term rehabilitation.
Stories of Our Impact
Story originally featured in Transforming Cleft’s Annual Report released in May 2023. For the last 20 years, Transforming Cleft has partnered locally to deliver Comprehensive Cleft Care (CCC) in Eastern Myanmar, where many families rely on medical care based in Thailand. Throughout 2022 & 2023, the border between Myanmar and Thailand remained closed. The…
Naly was born with a cleft palate. His parents were acquainted with the challenges this poses for feeding and eventually for clear speech – a cousin was also affected by cleft years earlier. Like their relatives, they felt that they had nowhere to turn. When Naly was 18 months old, the family learned that a surgical…
Nurit was relieved when her daughter, 1.5 year old Gebrela, made it successfully through her third surgical treatment at CURE Ethiopia, Transforming Cleft’s local partner. The procedure was shorter and less intimidating than her daughter’s cleft lip and cleft palate surgeries. By nearly eliminating the chance of cleft-connected hearing loss, Nurit knew it was worth…
“It was like a cold bucket of water pouring over me…”. Rubí described the moment she learned her son Brian would be born with a cleft lip and palate. As the news doused her, her thoughts darted. Until then, Rubí and her husband Luis were focused on the jubilation of their first pregnancy. Cleft wasn’t…
Cristian’s first experiences with healthcare caused his family to feel fear and distrust. He was born in Bolivia with a cleft lip and palate. His parents, Teresa and Fabricio, were uncertain about the future. But one thing they did know – they would be along side their son every step of the way. In Bolivia,…
When Vasi and Atanas first met 1-year-old Hristo in an orphanage in Bulgaria, they felt an instant connection. Hristo had been given to the orphanage due to his cleft lip and palate. Three other families had considered adopting him, however, perceptions of the cleft journey ultimately changed minds. For Vasi and Atanas, Hristo would complete…